Participants take part in the inaugural Uhuru Sickle Cell Run in Lira last year. This year's Run will be held on October 4, 2025.
Uganda continues to grapple with the devastating impact of sickle cell disease (SCD), with high-end medical facility C-Care reporting that over 20,000 babies are born with the condition each year. Alarmingly, close to 80% of these children do not survive beyond their fifth birthday.
Days ago, Daily Monitor quoted Dr. Jonans Tusiimire, a leading medical practitioner, emphasizing that sickle cell disease remains a major public health challenge in Uganda, disproportionately affecting newborns and placing immense strain on families.
This discussion comes at a timely moment, as preparations intensify for the second edition of the Uhuru Sickle Cell Run, scheduled for October 4, 2025, in Lira City.
Themed “Running for Awareness; Together Against Sickle Cell,” this year’s event aims to raise awareness, mobilize resources, and foster solidarity for those affected by SCD.
Speaking to members of a WhatsApp group coordinating the event, Daniel Roy Odur, Executive Director of the Catherine Phil Sickle Cell Support Initiative (CAPSCI), highlighted the importance of the run:
“This group is a space for us to connect, share information, and work together to raise awareness and support for individuals and families affected by sickle cell disease. The Uhuru Sickle Cell Run provides an opportunity to educate the public, raise funds for support services, and advocate for better healthcare and resources for those living with sickle cell disease. Your involvement is crucial in making a positive difference.”
Odur further noted that the 2025 edition will build on the success of last year’s inaugural run in Lira City, which drew significant public support.
“Proceeds from this year’s run will be directed towards acquiring two HB electrophoresis machines for Apac General Hospital and Amolatar Health Centre IV, along with the necessary reagents. These machines are essential for accurate and timely diagnosis of SCD, enabling healthcare providers to provide appropriate treatment and care.”
He appealed to the public to join the cause:
“Register at 25,000 shillings and help us raise awareness and improve diagnostics of sickle cell disease in the Lango sub-region.”
How to Register
- Contacts: 0772897869 / 077373335
- Email: info@capsci-uganda.org
- Website: www.capsci-uganda.org
With sickle cell disease claiming thousands of young lives each year, advocates say the Uhuru Sickle Cell Run is more than just a sporting event, it is a powerful symbol of unity and a call to action.
See pictures from last year’s run
Health Minister, Dr. Jane Ruth Aceng, graced the inaugural run last year in Lira.
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